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Dementia Action Week: Act Now for a dementia-friendly future

“As we become more emotional & less cognitive, it’s the way you talk to us, not what you say, that we will remember. We know the feelings, but don’t know the plot. Your smile, your laugh & your touch are what we connect with.”

Christine Bryden

This week is Dementia Action Week and today is World Alzheimer’s Day, and with close to half a million Australians affected, many of us know someone living with dementia. However, understanding what that actually means for those affected and how we can support them to lead their best life is another story.

At Oryx an often-used phrase to elucidate dementia is, ‘If you’ve met one person living with dementia, you’ve met one person living with dementia’. The condition is a different experience for every individual and this can make supporting a loved one living with dementia difficult and sometimes overwhelming.

To help you navigate this world, Dementia Australia have honed in on seven areas that you can fine-tune to support a loved one living with Dementia; we thought we best share them all.

Home Life for people living with Dementia

People living with dementia can experience their world as confusing, disorienting and, at worst, disabling and even dangerous. A well-lit home, devoid of trip hazards, with familiar keepsakes and frequently used items kept in plain sight, can help maintain abilities and create meaningful engagement. Providing essential prompts, accessibility and reducing risks can support a person living with dementia.

At The Richardson and The Queenslea Aged Care, we support residents living with cognitive impairment through a Montessori approach to care in which their communal dining and lounge space has been adapted to have a positive effect on a person living with dementia with directional cues and ordinary items to encourage residents to engage in meaningful activities with interdependence and autonomy. This help sheet has simple ideas for creating a dementia friendly environment in your home or visit the Dementia Enabling Environments website for practical tips, guides and resources to make the place where we live more Dementia enabling.

Giving people with Dementia Space

This refers to the concept that, due to our lack of understanding of our loved ones capabilities, we may find ourselves taking over and not allowing them the space to do things for themselves.

Dementia presents differently in each individual and it is important that we slow down and allow our loved ones the opportunity to communicate. What’s more, when we are communicating with someone affected by dementia we must make sure we speak to them and not their carer, or their family member or friend. This leaflet is a handy reference for the principles of communication with those living with dementia.

Listening to Others that are Living with Dementia

We can tend to go into problem solving mode when we believe someone close to us needs help. But, more often than not, they are not wanting a solution, they are just looking for a familiar face and listening ear. No doubt learning to live with Dementia is extremely challenging for both those affected and their loved ones. Sometimes hearing the experience of others can help contextualise one’s own experience; here are a few recommended reads:

1. ‘Somebody I Used to Know by Wendy Mitchell
2. ‘What the hell happened to my brain? Living beyond Dementia by Kate Swaffer
3. ‘Dear Alzheimer’s, A Diary of Living with Dementia by Keith Oliver
4. ‘Dancing with Dementia’ by Christine Bryden 

The importance of Words

At Oryx we regularly talk about the importance of words. We know only too well that the words used in speech and in writing can influence a persons mood, self-esteem, and feelings of wellbeing. A casual misuse of words or the use of words with negative connotations when talking in everyday conversations can have a profound impact on a person.

Furthermore, not giving a person the opportunity to find their own words can be very frustrating for them and prevent them from participating in the conversation. Stop, slow down and take the time to find the right words and enable others to find their words too.

Remind Me

A person living with dementia may be more able to effectively manage their symptoms through the use of technology, aids and reminders. At our homes we often have Tech sessions on our lifestyle calendar, an opportunity for our residents to learn how to optimise their personal tech (mobile phones, tablets and computers). Similarly, if you can find time to trouble shoot technology issues on a weekly basis it will likely have a positive effect on your loved one’s quality of life.

There are also a number of apps you can download to support people living with dementia; for example A Better Visit is a free app featuring a range of two-player games designed to enhance communication and facilitate positive social interactions between people living with dementia and their visitors.

Taking the Initiative

If your loved-one living with dementia wants to make plans, then the best thing to do is help them! Other family and friends may want to spend time with your loved one, but are unsure how to stay connected in ways that are meaningful. You can help them by assuring them of how much they matter and the important role they play in ensuring your loved one is living their best life.

This booklet, Family and Friends Matter includes real life stories of friends and families learning to reconnect with their loved one who is living with dementia and shares tips of how to make time together enjoyable for all involved.

The importance of Health for managing Dementia

This comes up in almost all of our topics and today is no exception. Activities for the brain and body along with eating well and drinking plenty of water are proven to improve the wellbeing of those with dementia.

At both of our aged care homes in Perth we have a dynamic lifestyle program including a range of brain training and exercise sessions to ensure all our residents are living their best life. Furthermore, with the our own in-house allied health service based onsite, we have a wellness package tailored to each residents specific needs and wellness goals. But, for those at home or visiting a loved one, simply going for a walk can significantly improve their day, and yours.

The theme for Dementia Action Week is, ‘Act Now for a Dementia-friendly future .’ Just taking the time to read this article is sincerely appreciated.

If you require any support or would like to discuss your situation or that of a loved one, please don’t hesitate to contact us.

From your friends at Oryx

The Richardson Aged Care – 9381 2800
The Queenslea Aged Care – 6280 1900
The Queenslea Retirement Living Apartments – 6280 1999